Tag: OE Patients

  • Episode 5: A Conversation with Ben Benson, Restaurateur

    Episode 5: A Conversation with Ben Benson, Restaurateur

    In this episode, restaurateur Ben Benson shares his experience building a successful business, all the while dealing with progressive vision loss. He takes us from the start of TGI Fridays, to Smith & Wollensky and Ben Benson’s Steakhouse. He speaks of the many adjustments he made throughout, and how his favorite technologies — iPhone, Siri and Alexa — help him compensate today.

     

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  • Episode 4: Must Know Info About Adjusting to Low Vision

    Episode 4: Must Know Info About Adjusting to Low Vision

    Too many patients with low vision believe “nothing can be done” to improve their quality of life. In this episode Dorrie Rush and Jaydan Mitchell are busting that myth with a review of just the basics everyone needs to know about living better with vision loss.

     

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  • Episode 3: Hadley’s Douglas Walker

    Episode 3: Hadley’s Douglas Walker

    We’re talking with Douglas Walker from Hadley about his video tutorials for Apple, Android and Microsoft, and the Hadley podcasts and discussion groups, that are all about empowering people with vision loss to thrive.

     

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  • Episode 2: Don’t Take The Fall, Prevent It

    Episode 2: Don’t Take The Fall, Prevent It

    Falling is unpleasant at any age and increasingly dangerous with age. Alice Massa, Occupational Therapist, shares her professional advice about elevating awareness, improving balance, and lowering risk factors to prevent the fall before it happens.

     

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  • Episode 1: Siri, Google & Alexa

    Episode 1: Siri, Google & Alexa

    The voice assistants are wildly popular, and particularly helpful for people with vision loss. In this episode, learn from OE’s tech expert Dorrie Rush, who they are, what they can do and why we love them.

     

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  • OE Patients Podcast: Introduction

    OE Patients Podcast: Introduction

    The launch of OE Patients Podcast brings to life the new Voices of Experience section on our website, where we’ll share conversations, interviews and profiles.

     

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  • December 2018

    December 2018

    Welcome to the December 2018 issue of Eyes Only, the longstanding membership newsletter of the Association for Macular Diseases, now featuring a special selection of content from OEPatients.org.

     

    Featured Articles


    Print Version

    [easy_media_download url=”https://oepatientsbu.xyz/2025/wp-content/uploads/2019/02/Eyes-Only-December-2018-Newsletter.pdf” target=”_blank” class=”directpdf” text=”Download June 2018 PDF”]

     

     

  • June 2018

    June 2018

    Welcome to the June 2018 issue of Eyes Only, the longstanding membership newsletter of the Association for Macular Diseases, now featuring a special selection of content from OEPatients.org.

     

    Featured Articles


    Print Version

    [easy_media_download url=”https://oepatientsbu.xyz/2025/wp-content/uploads/2019/02/Eyes-Only-June-2018-Newsletter.pdf” target=”_blank” class=”directpdf” text=”Download June 2018 PDF”]

     

     

  • January 2018

    January 2018

    Welcome to the January 2018 issue of Eyes Only, the longstanding membership newsletter of the Association for Macular Diseases, now featuring a special selection of content from OEPatients.org.  

    Featured Articles

    Print Version

    [easy_media_download url=”https://oepatientsbu.xyz/2025/wp-content/uploads/2018/05/Eyes-Only-January-2018-Newsletter.pdf” target=”_blank” class=”directpdf” text=”Download Jan 2018 PDF”]

  • Spring 2017

    Spring 2017

    Welcome to the Spring 2017 issue of Eyes Only, the longstanding membership newsletter of the Association for Macular Diseases, now featuring a special selection of content from OEPatients.org.

     

    Featured Articles

     

     Print Version

    [easy_media_download url=”https://oepatientsbu.xyz/2025/wp-content/uploads/2019/01/Eyes-Only-Spring-2017-Newsletter-2-28-17_Hi-Res-Placed-1Up.pdf” target=”_blank” class=”directpdf” text=”Download Spring 2017 PDF”]

     

     

  • OE Patients Features Assistive Technology at Empowering Event for People with Vision Loss

    OE Patients Features Assistive Technology at Empowering Event for People with Vision Loss

    On October 18, 2018, OE Patients held an accessibility event featuring smart wearables for people with vision loss, hosted jointly with Manhattan Eye, Ear, and Throat Hospital in New York City.

    Representatives for major assistive technology brands spoke about and demonstrated their electronic glasses, such as OrCam, IrisVision, Jordy by EnhancedVision, and Acesight by Zoomax.

    eSight and the service Aira were also described by Dorrie Rush, the moderator of the event, and the Chief Content Officer at OEPatients.org.

    After product introductions, the speakers engaged in a lively Q&A with the attendees, the majority of whom were living with vision loss due to a range of eye conditions, including age-related macular degeneration and retinitis pigmentosa.  Pricing, features, and different uses for the electronic glasses were explored.

    In the second half of the event, the attendees toured the room, to try the different wearables for themselves.

    The Progress of Assistive Technology

    The featured products at the event were smart wearables that helped with maximizing one’s remaining vision, to different degrees. Ideal uses ranged, depending on the product.

    For example, certain electronic glasses such as IrisVision or Jordy, were more appropriate for specific, stationary activities such as watching TV or reading. Other options like the Acesight offered a wider range of mobility, with additional features like adjustable contrast or colors.

    The OrCam My Reader and My Eye products, however, rather than enhancing one’s vision, used smart cameras to convey visual information from the world to the user. (For an overview of all the featured electronic glasses, read our event recap.)

    If there was one thing everyone in the room agreed upon, however, it was that across the board, assistive and accessible technologies have flourished over the past decade.

    Vishnu Hoff, an education coordinator at the Manhattan Eye, Ear, and Throat Hospital, has worked in ophthalmology for over 20 years and witnessed firsthand the evolution of technology for people with visual impairments.

    “Seeing technology finally being to offer some relief from the difficulties of vision loss is fantastic,” he said. “Ten years ago, I could probably rattle off 4 or 5 technologies available and now, there’s that many coming out a month.”

    Finding the Right Solution

    OE Patients believes that every person with visual impairments lives a personal, very individual visual experience due to the unique progression of his or her eye condition.

    Throughout the event, speakers and attendees alike echoed this sentiment, observing that it was vitally important to experiment with different solutions to see what worked.

    Darius Pietrocola, an assistive technology trainer, liked that the demonstrations at the event helped attendees experience the wearables for themselves. He noted, “One size doesn’t fit all. You really, really have to see what works.”

    The Importance of Persistence

    When it comes to successfully finding the right solution, an attitude of persistence and perseverance is key — another tenet of the OE Patients philosophy.

    Steven Hansen, from Eye Assist, described the Jordy users he personally knew. They ranged widely from little third-graders to even a 101-year old gentleman in the Bronx.

    He pointed out the one thing he felt helped with one’s adoption of assistive or accessible technology across all ages — mindset. “You have to be optimistic,” Steven said. “You have to be good with technology. Anyone can pick up on it. It’s a learning curve, but you eventually can do it.”

    The motivated energy in the room seemed to prove this point.

    Judith Eisner, an attendee living with retinitis pigmentosa, expressed her eagerness for any chance to learn new technologies. Her newest project was mastering VoiceOver. She was also a big fan of Microsoft’s Seeing AI app. At the event, she was curious about electronic glasses as a potential solution.

    “Necessity is the mother of invention,” Judith said. “When you need it, you try to do it.” She paused and then continued, as her friend next to her nodded, “Part of me would like to stay in my apartment all day long and keep listening to my books, but that’s not a healthy way to live. I have to keep making adjustments.”

    Opening Up Direct Dialogue for Audiences

    The uniqueness of the event’s format and environment was not lost on the representatives of the assistive technology brands.

    David Bradburn, the CEO of Zoomax who debuted his company’s new electronic glasses, Acesight, earlier this year, spoke about the valuable opportunity to develop a dialogue with a motivated audiences.

    “I wish every eye hospital would do the same thing,” he said. “Usually, we’re in a conference or at an exhibition, and people come to our booth and ask us questions in isolation, and they might forget what they’ve seen or heard.”

    He mentioned that he would next be bringing Acesight to American Academy of Ophthalmology (AAO) and American Optometric Association (AOA), to ophthalmologists and optometrists who are interested in learning more about the needs of audiences with vision loss.

    Bringing Empowerment to Education

    Innovative education for audiences living with vision loss was exactly what Joan Daly, board member of OE Patients and member of the Association for Macular Diseases, had in mind.

    A year ago, Joan and Dorrie helped to launch the joint accessibility resources series with Manhattan Eye, Ear and Throat Hospital. “What we really wanted to do was to reach out to people and create awareness,” Joan said. “There are specific things that people need assistance with and all of this technology to use the vision they’ve got.”

    So far, OE Patients’ Accessibility Resources series has spotlighted the most popular topics from the website, including accessibility tips for key Apple products, like the iPhone, iPad and the Kindle, smart speakers, audio description, and more.


    About the Accessibility Resources Series

    The “Accessibility Resources for People with Visual Impairments” series explores the latest tips, advice and news for living well with vision loss.

    Dorrie Rush, Chief Content Officer at OEPatients.org, is the moderator and a key speaker for the series, which is hosted at Manhattan Eye Ear and Throat Hospital, and presented by the Association for Macular Diseases.

    Contact

    Dorrie Rush
    Chief Content Officer
    OE Patients
    [email protected]

  • An Introduction to Ophthalmic Edge Patients

    An Introduction to Ophthalmic Edge Patients

    Welcome to OE Patients.

    The Association for Macular Diseases, Inc. has partnered with Ophthalmic Edge to provide this empowering resource for patients living with visual impairments and progressive vision loss.

    We’re here to help you keep up with helpful tips and encouraging advice. Learn about Making Adjustments that will keep you doing the things you need and love to do. Get the inside scoop on today’s game-changing Accessibility & Technology for vision. Pay attention to your Health & Well-being, and stay tuned for upcoming Voices of Experience.

    Accessibility settings are always available at the upper right corner to make text larger or increase contrast. For total ease, click the ReadSpeaker button on every page and listen as the text is read aloud.

    We want to hear from you. Please feel free to post a comment, share on social media, or send an email to [email protected].