Tag: glaucoma

  • Communicate Better with Your Doctor

    Communicate Better with Your Doctor

    A visit to your eye doctor can come and go in a blur. Discussing a loss of sight is a dreadful thought — however, avoiding it will not yield positive results either. Time with the ophthalmologist may be brief, so it is important to be prepared and engaged. Considering these steps, before every appointment, will help you be an informed patient.

    • If you do not understand something the doctor says, or the terminology used, feel free to say, “I don’t understand, please explain.” Don’t be afraid to speak up.
    • Summarize back what you heard, to clarify your understanding. “So you are telling me that age-related macular degeneration will make me blind?” The doctor responds, “No, I am saying that there will be some loss of your central vision, possibly to the level of legal blindness, but macular degeneration does not cause total blindness.”
    • Request written materials, or even pictures or videos that you can take time to understand and absorb at home.
    • Ask about best-case and worst-case scenarios, and what is the most-likely scenario for you?

     

    Image of ophthalmology office activity.
    • Write your questions and bring someone with you as an advocate, to read the questions on your behalf, and to take notes.
    • If treatment is available, understand the risks involved. “Can injections in the eye cause glaucoma?” 
    • Ask if there is someone you can talk to, who is living with the condition, or has received the treatment.
    • If treatment is not available, ask for alternative therapies or lifestyle changes that may help your longterm prognosis and quality of life. Don’t accept “nothing can be done” for an answer.
    • If you are told nothing can be done to improve your vision, ask your ophthalmologist for information and resources to help you live successfully with vision loss, including referral to a low vision specialist and vision rehabilitation services.

    It is crucial to be an Informed Patient when considering treatment or potential participation in a clinical trial. Clearly review, discuss and weigh the possible benefits against the risks. Consent forms are often many pages of medical and legal jargon — challenging for anyone to read, but especially hard with a visual impairment. Do not sign or agree to anything you have not read and understood completely.

     

  • OE Agrees With AAO Advice

    OE Agrees With AAO Advice

    With a nod to Healthy Aging Month, the American Academy of Ophthalmology (AAO) published a series of tips for living better with low vision.  They point out that the number of older Americans with low vision will likely double by 2050.  The leading causes of low vision, a visual impairment that cannot be corrected by lenses or medical treatment, are age-related macular degeneration, diabetic eye disease, glaucoma and inherited retinal diseases.  To add insult to injury, most people with declining vision believe that nothing can be done to help them.

    We are pleased to stand in agreement with AAO’s recommendations for maintaining a productive and independent life in the face of vision loss.  Subscribers to OEPatients.org are ahead of the curve and already aware and implementing the small changes that keep them actively engaged.  Let’s walk together through an overview of how their tips concur with our content.

     

    • Improve Contrast

    Utilize contrasting colors throughout the home to improve clarity in table settings, kitchen tools and surfaces, furnishings, door frames and steps. 

    OE:  Nate’s Low Vision Makeover

    OE:  Adjusting Your Home For Vision Loss

     

    • Prevent Falls, Improve Lighting

    Add lighting to hallways and staircases, task lighting in the kitchen and work places.

    OE:  Don’t Take The Fall, Prevent It

    OE:  Home Safety & Light Checkup

     

    • Reduce Clutter & Organize

    Essential to safety and sanity, keep things in their appropriate places and don’t be a collector.

    OE:  Low Vision Awareness: Time To Get Organized

    OE:  Spring Cleaning Gives More Than It Takes

     

    Headphone on a side stack of books.
    Headphone on a side stack of books.
    • Embrace Technology

    Audiobooks and voice assistants like Alexa & Google are enormously helpful and easy to adopt.

    OE:  Get Back The Joy Of Reading With NLS

    OE:  Alexa, Read My Book

    OE:  Event Recap: Siri, Google & Alexa

     

    Man using IrisVision technology.
    • See Ophthalmologist & Low Vision Specialist

    The doctors can help patients maximize remaining vision.

    OE:  Event Recap: Electronic Glasses

    OE:  Magnifiers Are A Must

    OE:  Be An Informed Patient

     

    • Vision Rehab

    Often this suggestion comes as a last resort for patients with advanced vision loss.  It usually requires legal blindness to qualify for vision rehabilitation services, but it is most effective when included early in the process.  Making incremental changes at every stage helps to dramatically ease the adjustment. Attempting to recover once the vision loss is severe, is far more difficult. 

    AAO:  Low Vision Rehabilitation Services

     

    Read the AAO News Release that inspired our post:

    More Older Americans Will Suffer From Low Vision,Here’s How to Make Life Easier and Safer

    Happy senior friends drinking tea at a table.

     

  • OE Patients: Best Of 2018 Articles

    OE Patients: Best Of 2018 Articles

    This year, we created a roundup of our most popular articles on OE Patients. Our best-of list for 2018 covers technology, health, and tips for making adjustments — from the secret to mastering iPhone’s VoiceOver to accessibility at arts museums.

    We hope you’ll be inspired to develop a new skill or create a good habit for the fresh new year!

    Apple’s iPhone

    10 Things To Know About iPhone Accessibility For Vision

    The iPhone is quite possibly the most adopted device, ever, for people with vision loss. This is because it is accessible out-of-the-box, even if you can’t see the screen at all.

    Discover the top reasons for using the iPhone.

    Let iPhone’s VoiceOver Do The Reading

    Apple’s built-in screen reader was a game-changer for those living with vision loss. Our accessibility expert, Dorrie Rush, writes about the secret to mastering iPhone’s VoiceOver gestures — practice, practice, practice.

    Learn how to master VoiceOver.

    Microsoft

    “Seeing AI” Is A Gift from Microsoft

    We love Microsoft’s Seeing AI, a free, intelligent camera app that translates images into words for people with visual impairments and blindness. Here are four features we especially like.

    Learn more about Seeing AI.

    Microsoft Soundscape 2018, A Review of What It Can Do

    Our accessibility expert Dorrie Rush appreciates the enhanced narration and awareness provided by Microsoft Soundscape, a navigation tool for people with vision loss.

    Read the full review of Soundscape.

    Apps and Technology

    App Happy

    Discover a collection of wonderful apps that empower people with visual impairments in ways we could only once dream.

    Click for our recommended apps.

    Electronic Glasses Event Recap

    In October, OE Patients held an accessibility event on wearable devices for audiences with vision loss.  We took a closer look into head mounted products including: OrCam, IrisVision, Jordy and more.

    Explore featured electronic glasses.

    GoGo Grandparent Gets Uber Without An App

    For older adults who need to get an Uber or Lyft without an app or smartphone, GoGoGrandparent is perfect.

    Find out more about GoGo Grandparent.

    Making Adjustments and Health

    Doctor, Am I Going Blind?

    Every eye condition is different. Read our article by ophthalmologist Dr. Yale Fisher, to understand how vision loss caused by macular degeneration, diabetic retinopathy and glaucoma rarely results in blindness.

    Learn more about vision across eye conditions.

    What Is A Cataract?

    Cataract is the leading cause of reversible blindness and vision loss in the world. Read more by Dr. Amilia Schrier, Director of Education at Manhattan Eye, Ear and Throat Hospital.

    Learn more about cataracts.

    Museums Making Art More Accessible

    From Florence to New York City, museums everywhere are making it easier for visitors who are visually impaired or blind to experience art.

    Find out how museums are opening up art.

  • Doctor, Am I Going Blind?

    Doctor, Am I Going Blind?

    To the question, “Am I going blind?,” the answer is most often, “No.”

    For the great majority of patients diagnosed with disease-causing progressive vision loss, use of the word “blindness” actually does not apply.  Fortunately, most patients treated for degenerative diseases retain some degree of visual function.

    While the amount varies (dependent on disease type, severity, persistence, and progression), it is far more accurate to describe most cases as visual impairments and not as blindness.

    Obviously, total loss of light perception is the ultimate fear.  Ophthalmologists must be extremely careful in their discussions with patients to address this fear.  While some diseases are severe, most can be limited.

    Macular Degeneration

    A frightening diagnosis always, and is the most common ocular disease in older age.  Some forms are genetically inherited and present in adolescents, teens, and much younger adults.  Although often described as the “leading cause of blindness in people over 65,” it is highly unlikely and extremely rare that it results in loss of light perception or blindness.  Macular degeneration generally affects the central vision, leaving peripheral intact.

    Progression of the disease is slow in most cases and can be well compensated.  Patients are able to continue their full and productive lives, making some adjustments and utilizing magnification and speech in widely available accessible technologies.  A strong mental approach coupled with a willingness to learn, are proven factors in maximizing remaining vision and enjoying life.

    Diabetic Retinopathy

    Diabetes-related eye disease is another common malady often associated with the reduction in normal sight.  While historically unrelenting, attention to medical and ocular problems early in the course of diabetes have completely altered the potential for devastating visual loss.  With current and updated treatments, visual loss can be prevented or at least limited.  Often, patient cooperation and participation in treatment is the key to success for diabetics.

    Glaucoma

    Primarily a disease of superficial retinal loss associated with elevated pressure within the globe of the eye.  The earliest patterns of visual loss from glaucoma are peripheral, not central, so a reduction of visual field can go relatively undetected by the patient.  As the disease progresses, more of the peripheral field is lost, followed finally by the loss of the central areas.

    Fortunately, with treatment and early recognition by a qualified professional, visual loss can be prevented or limited.

    Legal Blindness

    Many have heard the term “legal blindness” and automatically interpret it to mean “blindness.” Legal blindness is a government definition or statute utilized to determine qualification for disability benefits.  The definition requires 20/200 vision or worse in the best eye with correction in place or visual field limitation to 20 degrees in diameter.  The condition causing the vision loss must be present or expected to be present, for one year or more.

    Legal blindness does not mean “no vision” and many people with this degree of vision loss live very full visual lives, albeit with a significant visual impairment.  On the other hand, “blindness” is usually understood to mean “no visual perception”.

    Clarification of the language associated with vision loss is critical, especially for those on the receiving end of these difficult words.  Speak with your ophthalmologist.  Make sure you understand your visual status and to what degree it is likely to change over time.  Most of the time vision can be preserved and loss can be limited.

  • AutoDrop Is A Real Eye Opener

    AutoDrop Is A Real Eye Opener

    An eye drop prescription for newly-diagnosed glaucoma was accompanied by a simple, stunning little gizmo that totally resolved the issues that commonly occur when trying to deliver the drops into the eye, and not onto the face.

    This clever invention takes the mess and the aggravation out of the self-administration of medication directly into the eye. And it has a companion device that controls the dose. Both the AutoDrop and the AutoSqueeze are products developed in England by Owen Mumford in collaboration with the Royal National Institute for the Blind.

    An eye drop guide is something you may have never heard of before today. It is a fascinating solution to a problem that can be annoying and even detrimental. This is one of those discoveries you’ll be sharing with friends.

    It’s really not unusual at all to have difficulty self-administering eye drops. The eye naturally blinks as the drop approaches, and it winds up on your eyelid instead of your eyeball. This eye drop guide is designed to override that reflex by holding still the lower lid and drawing the focal point away from the drop as it positions the bottle and steadies the hand for accurate delivery, without waste.

    The bottle of drops clips into AutoDrop and can be used with its companion AutoSqueeze to further enhance stability for patients with dexterity issues. The accurate delivery of medicine is essential for successful treatment.

    This is not the only eye drop guide on the market, but it does seem to be a favorite. Consult your doctor or pharmacist for advice on these products. AutoDrop can be found online at Amazon, Walmart, and Walgreens for a retail price in the vicinity of $5. It is easily cleaned and can be used on multiple bottles, or you can give each dropper you use its own guide.

    Autodrop Eye Drop Guide (Video)

     

    Please note that this article was not paid for, affiliated with, or endorsed by any third-party companies. The views and opinions expressed in this article are solely those of the author’s.