OE Patients

Author: Dorrie Rush

  • Developments in Vision Science

    Developments in Vision Science

    News about advances in research and treatment related to vision loss can come at us in quantities that are not only abundant, but also quite redundant. Here is a selection of noteworthy developments reported in 2024.  We’ll be watching for interesting topics to add and progress to share. 

    • Glaucoma Implant

    FDA Approves First-of-its-Kind Glaucoma Treatment

    BrightFocus Foundation

    brightfocus.org

    The iDose TR, is implanted in the eye to automatically deliver glaucoma medicine consistently for up to 3 years. The device replaces the need for manually administered eye drops. Learn More

    • Retinal Implant

    Science Announces Positive Preliminary Results For Vision Restoration In Pivotal Clinical Trial

    Science Corporation

    science.xyz

    Science Corporation introduced the Prima implant, an advanced retinal device that has shown promising results in restoring vision for individuals with geographic atrophy, a form of age-related macular degeneration (AMD). Clinical trials reported significant improvements in visual acuity among participants. Learn More

    • Stargardt Pill 

    Daily tablet Shows Promise as First Treatment for Stargardt Disease

    Macular Society

    macularsociety.org 

    The drug, gildeuretinol (ALK-001), has shown the potential to slow disease progression by more than 20% during the 2 year phase 1 & 2 clinical trials. Based on these results the drug appears to be on fast track for FDA approval. Learn More

    Insert Image: https://elements.envato.com/vision-eye-exam-and-healthcare-with-a-doctor-woman-SB2H9JF 

    Caption/Alt-text: Research doctor examines older man’s eyes

    • Falls Prevention

    Link Between Eye Examinations and Fall Prevention in Older Adults

    American Optometric Association 

    aoa.org

    Studies highlight that individuals with eye conditions such as cataracts, age-related macular degeneration (AMD), and glaucoma have a higher risk of falls and fractures. This underscores the importance of integrating fall prevention strategies into eye care for affected patients. Learn More

    • Macular Degeneration

    Scientists Get Closer to Stopping Macular Degeneration

    US News & World Report

    usnews.com

    Age-related macular degeneration is the leading cause of vision loss in people over 50. Treatments currently available slow the inevitable progression of the disease, but none actually halt it. Researchers have just discovered a protein that might possibly change that.  Learn More

  • Hadley is Ready When You Are

    Hadley is Ready When You Are

    Receiving a diagnosis that includes vision loss, will throw you into a state of consternation. The information is as murky as the vision it portends. The problem is progressive and there is, currently, no treatment, but a lot of research is underway and maybe they’ll find a cure, soon. Meanwhile, the doctor will follow your case closely and hopefully your eye sight will not change dramatically in the short term. You have more questions than answers, so this is where you ask, “What should I do now?” And now means now, not later.  The response, may very well sound like, “There is nothing you can do.”  But this is not an acceptable answer. 

    There is, in fact, plenty you can do and so much you will want to know. A better answer, actually the best answer, would be for your healthcare provider to take just a few moments to suggest connecting with Hadley’s informative programs and services, which will support you every step of the way forward. 

    Getting help doesn’t  have to be difficult. 

    At Hadley, you have the freedom to decide what, when and how to learn. Membership requires no forms, no referrals, no assessments, no fees. There is no need for transportation, no waiting list and no legal blindness requirement. Get started any time and work at your own pace. Review your topics of interest online at HadleyHelps.org, or request information by phone at 800-323-4238. 

    How Hadley helps. 

    From the homepage Hadley asks, “What would you like to learn now?” It is a compelling invitation, followed by the main sections, including Daily Living, Adjusting to Vision Loss, Technology, Working and more. Discover a wealth of audio workshops, podcasts and discussion groups. Explore a section or search a topic. You’ll find this incredibly comprehensive reference always ready when you are. With Hadley you’ll gain a sense of community, confidence and comfort. 

    Hadley welcomes adults with vision loss, their family members, friends, colleagues and healthcare professionals. There are no limitations to what you learn or when you lean it. 

    Go to: HadleyHelps.org or call 800-323-4238

  • Answers to the Most Asked Questions on Vision Loss

    Answers to the Most Asked Questions on Vision Loss

    Living with vision loss is a journey filled with challenges, adaptations, and—most importantly—possibilities. As we navigate this path, questions arise that are often shared by many others facing similar experiences. Below, we address some of the most common concerns about vision loss, offering practical insights and guidance.

    What is the difference between low vision and blindness?

    Low vision refers to a significant visual impairment that cannot be corrected with glasses, contact lenses, or surgery. It often affects one’s ability to perform daily tasks but does not result in total blindness. Blindness, on the other hand, encompasses a range of conditions, from partial vision to no light perception. Legally blind individuals have a visual acuity of 20/200 or less in their better eye, or a visual field of 20 degrees or less. 

    What are the leading causes of vision loss?

    The most common causes include:

    • Macular Degeneration: Damage to the central part of the retina, affecting sharp, detailed vision.

    • Glaucoma: A condition causing damage to the optic nerve, often due to high eye pressure.

    • Diabetic Retinopathy: Damage to blood vessels in the retina due to diabetes.

    • Cataracts: Clouding of the lens, which can often be treated with surgery.

    • Retinitis Pigmentosa: A genetic disorder leading to gradual peripheral vision loss.

    Understanding the cause of vision loss is crucial for managing symptoms and exploring treatment options.

    Is there anything I can do to prevent vision loss?

    Prevention starts with regular eye exams, especially if you’re over 40 or have a family history of eye disease. Maintain a healthy lifestyle by eating a diet rich in leafy greens, fruits, and omega-3 fatty acids, exercising regularly, and managing chronic conditions like diabetes. Protect your eyes from UV rays with sunglasses, and avoid smoking, which increases the risk of many eye diseases.

    How do I adapt to vision loss in daily life?

    Adapting to vision loss requires practical solutions and emotional resilience. Here are some tips:

    • Use Assistive Technology: Screen readers, magnifiers, and text-to-speech devices can enhance independence.

    • Organize Your Space: Keep items in consistent places to locate them easily.

    • Rely on Contrast: Use contrasting colors for everyday objects to make them more visible.

    • Seek Rehabilitation Services: Vision rehabilitation specialists can teach new strategies for cooking, reading, and navigating safely.

    Will I lose all my vision?

    The progression of vision loss depends on the underlying condition. Some diseases, like macular degeneration, may stabilize with treatment. Others, like retinitis pigmentosa, may lead to more gradual changes. It’s important to work closely with your eye care provider to monitor changes and explore interventions.

    How can I stay positive while living with vision loss?

    Staying positive starts with acknowledging your feelings—grief, frustration, or fear are natural. Build a support network of friends, family, and others who understand your experience. Set achievable goals and celebrate progress, no matter how small. Remember, vision loss does not define your ability to live a fulfilling, independent life.

    What resources are available for people with vision loss?

    There’s a wealth of resources available:

    • National Organizations: Groups like HadleyHelps.org, American Foundation for the Blind (AFB) and Lighthouse Guild offer tools, education, and community connections.

    • Local Services: Check for vision loss support groups and rehabilitation services in your area.

    • Technology: Apps like Be My Eyes, Seeing AI, or specialized GPS systems provide support and accessibility.

    Living with vision loss may seem overwhelming, but it’s important to remember that you are not alone. The right combination of knowledge, tools, and support can transform challenges into opportunities. Keep asking questions, seeking solutions, and embracing life with vision—not just of the eyes, but of the mind and heart.

  • OE Patients 10 Most Searched Topics This Year

    OE Patients 10 Most Searched Topics This Year

    It’s time for a quick review of the ten top searched posts on OE Patients in 2024. The popular posts include practical tips and encouraging advice focused on living better with vision loss, and well worth referencing again.

    1. Hottest Low Vision Gifts: A curated list of desirable gifts for individuals with low vision, including universally appealing items and invaluable presents.

    2. 8 Ways to Practice Eccentric Viewing: Guidance on techniques to utilize peripheral vision effectively, beneficial for those experiencing central vision loss.

    3. Accessibility Support Phone Lines You Should Know: Our coveted list of specialized support contacts emphasizing accessibility, featuring companies like Apple, Amazon, Microsoft, and Google.

    4. GoGo Grandparent Gets Uber Without App: This uniquely specialized membership service facilitates and monitors orders for Uber, DoorDash, Instacart, and more, without requiring an app or smartphone.

    5. Doctor, Am I Going Blind? An article addressing the common fear associated with vision loss, often reassuring that the answer is “No.”

    Illustration of a UPC bar code complete with inventory number

    6. Smartphone Barcode Readers Help Visually Impaired: Insights into how product barcodes can be scanned to provide product details, directions and instructions, not otherwise easily accessible to customers with vision loss.

    7. Accessible Workouts for Visually Impaired People: A compilation of accessible workouts, including strength training and feel-good exercises, along with tips from experts.

    8. Alexa, Read My Book: Instructions on how Amazon’s voice assistant can read Kindle books or play Audible books upon request, offering an independent way to enjoy literature.

    9. Surprises Contained in the White Cane: A discussion on the personal journey of accepting and utilizing a white cane, highlighting the independence it can provide.

    10. Try a New Approach to Reading Restaurant Menus: Suggestions for overcoming challenges in reading menus, encouraging continued enjoyment of dining experiences.

  • The Accessibility of AirPods

    The Accessibility of AirPods

    Now With FDA Approved Hearing Aid Feature

    Updated November 18th, 2024

    In the earliest days of AirPods, people would frequently ask, “Do they fall out?” and “Are you afraid you’ll lose them?” The answer to both questions was, and still is, “Yes.”  But that did not deter the adoption of this product well over 100 million times.  The exceptional wireless experience far outweighed the fear of loss. Apple also made it less of a concern by adding “Find my AirPods” and selling replacement pods and charging cases separately.

    The accessibility factors are significant, for all users, visually impaired or not. Once connected to your device AirPods re-connect easily and pause automatically when you take them out of your ear.  No more getting tangled up in wired buds or constantly pairing the dropped connections on Bluetooth earpieces. Feel free to use a pod in just one ear, or both. A full charge on AirPods provides up to 5 hours listening, or 3 hours talk time, and the wireless charging case rapidly recharges the Pods for up to as many as 24 hours of use.

    The FDA Approved AirPod Hearing Aid Feature 

    In the true spirit of accessibility, AirPods Pro 2nd generation can also serve as an over the counter (OTC) hearing aid for adults with low to moderate hearing impairments. The Hearing Aid Feature (HAF), is a software only medical mobile application that can test the users hearing needs and adjust accordingly. 

    More About the AirPod Options

    There is also a Live Listening feature, which helps everyone hear better in extremely noisy environments, such as parties, concerts, industrial and recreational activities.

    In the earliest days of AirPods, people would frequently ask, “Do they fall out?” and “Are you afraid you’ll lose them?” The answer to both questions was, and still is, “Yes.”  But that did not deter the adoption of this product more than 100 million times.  The exceptional wireless experience far outweighed the fear of loss. Apple also made it less of a concern by adding “Find my AirPods” and selling replacement pods and charging cases separately.

    The accessibility factors are significant, for all users, visually impaired or not. Once connected to your device AirPods re-connect easily and pause automatically when you take them out of your ear.  No more getting tangled up in wired buds or constantly pairing the dropped connections on Bluetooth earpieces. Feel free to use a pod in just one ear, or both. A full charge on AirPods provides up to 5 hours listening, or 3 hours talk time, and the wireless charging case rapidly recharges the Pods for up to as many as 24 hours of use.

    Communicating with Siri is a totally touch-less activity. Say, “Hey Siri, play the OE Patients Podcast.’ “Hey Siri, call Lucinda on mobile.” “Hey Siri, check my AirPods battery level.” “Hey Siri, turn up the volume.” “Hey Siri, what time is it?” Let Siri “Announce Message” as they arrive.  Select the contacts you wish to allow and Siri knows not to interrupt if you’re on a call.  It’s worth noting, while AirPods are compatible with non-Apple devices, the Siri features are not.

    All that popularity has naturally spawned more AirPod options. The original AirPods are quite satisfying, or go ahead and splurge on Air Pods Pro for better sound quality and the adjustable in-ear fit and the peaceful state of active noise cancellation. Should the fear of loss still grip you, consider Power Beats Pro, another premium wireless Apple earbud with a design that holds it very securely in your ear. Prices range from $159. to $249. and you can always Google for the best sale price of the day. There is also the AirPods Max, at $549, a wireless headset, considered the highest in fidelity.

    Apple AirPods and AirPods Pro side by side on blue background.
    Apple AirPods and AirPods Pro side by side on blue background.

    AirPods

    AirPods Pro

    Image shows Powerbeats Pro wireless ear bud with secure ear hooks.
    Image shows Powerbeats Pro wireless ear bud with secure ear hooks.

    Powerbeats Pro

  • Delta’s Attention to Accessibility

    Delta’s Attention to Accessibility

    Airlines are making noticeable efforts to provide accessibility services to all travelers and you don’t have to be a frequent flyer to enjoy the benefits. Attention to accessibility is a valid priority when choosing your air travel accommodation. Delta Air Lines is definitely one to watch and an excellent barometer for what customers should expect. Here we look at their newest accessibility innovation, dedicated accessibility support service and the advisory board that keeps it moving in the right direction.  

    A Better Flight Map for All to Follow

    The ever-popular flight map is getting an upgrade on Delta Air Lines and it’s focused for visual accessibility. The new map has a cleaner design, a high-contrast display, larger text and larger icons. The more inclusive version was created to provide better access for visually impaired customers, and as we know, the increased legibility is likely to improve the flight map experience for all travelers. The accessible map is rolling out now. A voice narration feature is also in the works.

    The flight map announcement, published on Delta News Hub, included a statement from Ekrem Dimbiloglu, Managing Director of Customer Experience, he said, “No one better connects the world than Delta. To truly fulfill that promise, we must ensure every customer can connect with their journey in a way that enhances their experience and makes them feel valued and cared for. We are proud to be the first airline to launch this technology, setting the standard for inclusive travel experiences across the industry.”

    Screenshot of Delta’s new flight map in Accessibility Mode (Image credit: Delta)

    Screenshot of Delta’s new flight map in Accessibility Mode (Image credit: Delta)

    Advisory Board on Disability

    Accessibility advances and services at Delta are informed through a valued collaboration with their Advisory Board on Disability. The board is comprised of frequent flyers, who are also customers with disabilities. Advisory board members provide feedback relating to services, training, communication, policies and procedures. 

    Dedicated Phone for Accessibility Services 

    Delta Air Lines Accessibility Services phone line is: 404-209-3434. A special and all-inclusive service from Delta, for customers with accessibility needs, book your air travel and accessibility assistance, all together. 

    Learn more about Arranging Airport Assistance

  • Remembering How to KISS

    Remembering How to KISS

    The acronym KISS is an abbreviation for the design principle: Keep It Simple Stupid, or if you prefer, Keep It Simple Sweetheart. The phrase is clear and uncomplicated, just like the message it conveys. KISS reminds us that systems and products function best when kept uncomplicated and easy to understand.  Keeping it simple is not only a design principle, but also a philosophy for life. 

    How KISS Applies to Vision Loss

    Experiencing uncorrectable changes in eyesight, at any level, can throw aspects of daily life out of whack. Activities that were once natural, may become more complicated. Adopting the Keep It Simple mind set, and adjusting one step at a time, will prove beneficial over the short term and long term. Developing more accessible solutions improves efficiency, reduces time consumption and stress. 

    Prioritizing simplicity is a process in itself. Get into the habit of minimizing the complexity of every day things. Here are some helpful articles that reflect the KISS principle.

    • Get Your House in Order

    Key to simplifying life is organizing. It may not be as easy to look for things as it once was.  A neat and tidy environment will compensate in substantial ways. Think about how nice it is to open a drawer and find exactly what you’re looking for, because it is right where you left it. With low vision often it is easier to put our hands on something before our eyes see that it’s there. Read Time to Get Organized

    • Think Small

    When the thought of doing something different or learning something new is daunting, think small. Breaking down tasks into smaller increments is often a recommended step toward simplifying. Let’s explore ways to get things done in minutes instead of hours. Read Small Changes Are Big

    • Create Kitchen Comfort

    Whether you enjoy preparing good food, or just consuming it, low vision will not bring an end to either. It helps to simplify, in much the same way other daily activities do. It’s always good to consider helpful tips along the way. Read 10 Kitchen Tips for Low Vision Cooks

    • Streamline Payment Process

    Paying bills can be an unpleasant experience on many levels. Adding vision loss to this process will make it a dreaded task each and every month. Time to automate payments for the greatest of ease.  Read Make Bill Paying Easier

    • Asking for Help

    Human assistance is simply the best way to get some things done, like getting through an airport. Read Arrange Airport Assistance

    Got a tip to share about keeping it simple? Email it to [email protected].

  • Accessibility Support Phone Lines You Should Know

    Accessibility Support Phone Lines You Should Know

    This article was originally published April 1, 2017 and most recently updated on October 23, 2024.

    With a welcomed emphasis on accessibility and inclusion, numerous companies now offer specialized support services for customers with vision loss. They are there to help you get the most out of their products and to ensure your devices are set right to accommodate your needs. This is an effort we greatly appreciate and are delighted to spread the word.

    Amazon’s Accessibility Customer Service

    888-283-1678

    Call to speak with an accessibility specialist who can help you buy books and other products, or get you directly to tech support for Amazon devices and services including Alexa, Kindle & Fire Tablet. Hands raised triumphantly for accessible and inclusive smartphones. 

    Audible Support: 888-283-5051.

    American Airlines Special Assistance 

    800-237-7976

    Arrange the assistance you need for navigating the airport, security screening, location of gate, seat number, connecting flights, baggage claim and ground transportation. 

    Apple Accessibility Support Line

    877-204-3930

    For users of Apple’s iPhone, iPad, iPod Touch, Apple Watch, or Mac – this is a gift. It is a special support line reserved for customers with vision, hearing, motor, and learning impairments. Senior AppleCare specialists are available 24/7 to help you get your Accessibility Settings right, answer your questions, and resolve your technical issues. They’ll even teach you a thing or two.

    AT&T 

    National Center for Citizens with Disabilities (NCCD)

    866-241-6568

    This is where wireless customers with vision loss get answers to questions about accessibility features and services available from AT&T.

    Comcast Accessibility

    855-270-0379

    Call Comcast’s Accessibility Support Center to speak with a specially trained representative about accessibility features. You can also communicate via email at: [email protected].

    Delta Air Lines Accessibility Services

    404-209-3434

    A special and all-inclusive service from Delta, for customers with accessibility needs, book your air travel and accessibility assistance, all together. 

    Google

    To request a call back, from a Google Disability support specialist, complete this online form.

    Call an accessibility specialist at Google through the BeMyEyes app on a smartphone or tablet. Click the ‘Service Directory tab’ button on the app’s home page, select Google in the Technical tab.

    Google Technical Support: 855-971-9121 may (or may not) be able to help with accessibility questions, depends on the specialist you connect with.

    HP Accessibility Support

    888-259-5707

    Technical support for customers with accessibility needs, pertaining to HP (Hewlett Packard) products, available from 6am to 9pm Mountain Time.

    LinkedIn Disability Answer Desk

    Call on Be My Eyes app

    Contact an accessibility specialist at the LinkedIn Disability Answer Desk through the Be My Eyes app, on a smartphone or tablet; click the Specialized Help button on the apps home page, then select Technical to get to LinkedIn.

    Microsoft Disability Answer Desk

    800-936-5900 or the Be My Eyes app

    The features you need to make your PC ‘vision friendly’ are built right into Windows – unfortunately, many people don’t know that. Microsoft recognized this as a significant problem and put in place a support team specialized in accessibility. So dial them up and get your computer set up to work for you (not against you). And, to make it even easier on yourself — allow them remote access to your PC and they can make the adjustments.

    Peloton

    The Accessibility Team at Peloton will answer your questions and give you a call, if you request it by email to: accessibility@onepeloton.com.

    Samsung Accessibility

    972-761-7123

    Contact the Accessibility Team at Samsung for answers to questions, large and small, about all Samsung products.  Reach out by phone or email: [email protected] to request a call back. 

    For general support in the U.S. contact Samsung at: 800-726-7864 by text or voice.

    Spectrum Accessibility Support

    844-762-1301

    Call this support line to learn about and take advantage of Spectrum cable accessibility accommodations.

    Spotify

    Call on Be My Eyes app

    Get help from your smartphone or tablet with any questions you may have about Spotify, the world’s largest music streaming service. Speak to a trained customer service specialist on BME; go to Specialized Help, Technical, then Spotify.

    T-Mobile Accessibility

    833-428-1785

    T-Mobile has an Accessibility Support web page. It says, “T-Mobile will provide accessible support for wireless network service and billing inquiries. Please contact our Accessibility Customer Care at 1-833-428-1785 if you have any questions or need special assistance. For additional support, please contact Customer Care.”

    United Airlines Accessibility Desk 

    800-228-2744

    Arrange the assistance you need for navigating the airport, security screening, location of gate, seat number, connecting flights, baggage claim and ground transportation. 

    Verizon Center for Customers with Disabilities

    800-974-6006

    verizon.com/disabilities

    Free 411 for your home phone and for your mobile phone. Get your bills in the format of your choice…large print or digital. They can help you with anything else pertaining to your home phone service.

    Verizon Wireless National Accessibility Center

    888-262-1999

    It can sometimes be challenging to get information about accessibility features that make your mobile phone, or tablet, work for you. Questions about enlarging text, using voice commands effectively, or using the screen reader, often remain unanswered when posed to your store representative. That should be the case no more – now there is a customer service and technical support center dedicated to helping people maximize the accessibility features built into all of Verizon’s mobile devices. Let them help you get your device set just right for you, from 8am – 9pm EST, Monday – Friday.

    We will continue adding Accessibility Support services as we discover them. Please let us know if you know of any before we do, and we’ll share by posting to this list.

  • Arranging Airport Accessibility Assistance

    Arranging Airport Accessibility Assistance

    Getting through an airport is quite a challenge, especially when vision loss makes it difficult or impossible to read the signs or see the arrows that indicate you are moving in the right direction.  There are apps that can read signs and describe places, but with a white mobility cane in one hand, and a carry-on in the other, there are no hands left to manage the smartphone.  Navigation apps may, or may not, be reliable. So what is a visually impaired traveler to do? 

    Planning for a solo trip from New York to Chicago, to visit Hadley, I needed to figure out how to get from point to point, with the greatest of ease. My travel skills were rusty, and my eyesight could not be depended on.  Mulling over the options made it clear, I was lacking confidence in my abilities.  Thanks to a, perfectly timed, conversation with Hadley’s Doug Walker, the plan started to form. He understood my concerns and generously shared his experience, and his approach to airport navigation.  I followed Doug’s method, pretty much exactly, as it made total sense and included requesting special accessibility assistance for help moving through the airport. Arranging to utilized this special service, not only solved my airport navigation fears, it also exposed a pre-conceived notion that was standing in my way.  The fact is I’d been avoiding assistance at the airport, for quite a while, because I found it to be completely focused on a wheelchair, and that was not the help I was in need of.  But, when I opened my mind to try this again, I discovered an expanded awareness and understanding, at the airport, for the needs of visually impaired people. 

    Direct Phone Lines for Assistance

    Upon booking air and hotel reservations, with American Express Travel Services,  I asked to select seats and request airport assistance on both outbound and inbound flights. They said I would have to call the airline or request special assistance online. I logged into the American Airlines mobile app and was able to select seats, but not able to request assistance.  Further attempts to communicate, by phone, with American Airlines proved futile, so I began to search online for an accessibility support phone line.  And that is when I found the direct phone number for special assistance at American Airlines, Delta and United. Call a dedicated specialist to organize all the help you need navigating the airport, security screening, baggage claim, connecting flights and ground transportation. 

    American Airlines Special Assistance 

    800-237-7976

    Delta Air Lines Accessibility Services

    404-209-3434

    United Airlines Accessibility Desk 

    800-228-2744

    These numbers have been added to our essential and coveted list of Accessibility Support Phone Lines You Should Know, which includes Apple, Amazon, Google, Microsoft and more. 

  • Driving While Visually Impaired

    Driving While Visually Impaired

    Updated Septemeber 26th, 2024

    The relinquishment of car keys, or a driver’s license, to a visual impairment, is a life-changing moment we do our best to avoid. It is not uncommon for people with impaired vision to drive only to destinations to which they “know the way by heart,” or with passengers who can read them the signs.

    Many states do provide some exemptions to the unforgiving 20/40 visual acuity requirement, which may come as a surprise to those in fear of having their license revoked. The qualification often requires a detailed examination by an ophthalmologist or optometrist, driving training, a specialized road test, and annual recertification. Some drivers can obtain a restricted license with the use of telescopic lenses that succeed in correcting vision to the 20/40 baseline. This adaptation requires a vision exam to prescribe the bioptic telescope, undergoing training, and taking a road test before receiving the specialized license.

    The restriction, most frequently exercised, with and without the authorization of the Department of Motor Vehicles (DMV), is driving during daylight hours only. Although not yet condoned for visually impaired drivers, assisted driving features can also help, such as lane departure warnings, blind-spot alerts, pedestrian and obstacle detectors, and autonomous emergency braking. The promise of actual self-driving vehicles remains illusive. Should it ever come to fruition, many of these issues would be solved.

    View of road from driver’s seat of car.
    View of road from driver’s seat of car.

    It would seem that many people would fail to meet the 20/40 acuity required to drive. The fact is, corrective lenses are the dominant qualifier. A person can also have severely impaired vision in one eye and passable vision in the other, which meets the requirement.

    Can you drive if you are legally blind?

    Legal blindness is a government standard measurement of visual acuity that qualifies a person for disability benefits and disqualifies their ability to drive. The US Social Security Administration defines legal blindness as vision that cannot be improved with corrective lenses and is no better than 20/200 or a visual field of 20 degrees or less in both eyes.

    If you want to continue driving, please do it responsibly and with good judgment. Denial is a defense mechanism, but in the case of driving with low vision, it can also be as deadly as a loaded gun. Here are the questions to ask yourself and guidelines to consider.

    • Are you putting yourself and others at risk?

    • Do you feel safe and confident behind the wheel?

    • Do you avoid driving at night or in poor visibility?

    • Do you stick to familiar routes?

    • Have you discussed vision aids for driving with your ophthalmologist or optometrists? 

    • Had any close calls or near misses lately?

    • Are you aware of your state’s requirements and exemptions for drivers with vision impairment?

    • Do you have an alternative and independent mode of transportation available, like Uber or GoGo Grandparent?

  • Gia Pergolini is a Champion

    Gia Pergolini is a Champion

    Congratulations to Gia Pergolini for delivering the first Team USA gold medal at the 2024 Paris Paralympics. Her first place finish, in the 100 meter backstroke, was her second consecutive gold medal in this event. In Tokyo 2021, she took gold and set the world record. In Paris, Gia also won silver in the 50 meter freestyle. More about Gia below, in video and in conversation.

    Gia Pergolini wins FIRST AMERICAN GOLD of Paris Paralympics | NBC Sports

    Read original post from NOV 18, 2021…

    Many rise to the challenge of vision loss, but very few break world records and earn gold medals to prove it. Gia Pergolini did, in the 100-meter backstroke, as a member of Team USA at the Tokyo Paralympic Games in August 2021. At seventeen, she certainly showed us how it’s done. Gia set her sights on gold and was prepared for it by a competitive swimming career that began at age five. Along the way she picked up two silver medals and broke four world records. A visual impairment would not deter this world-class athlete.

    Gia’s world record setting gold medal win in Tokyo and interview at Retina Society 2021

    I spoke with Gia one Saturday afternoon following her swim practice and was particularly interested to learn more about her point of view. Here are the questions I asked, followed by the answers, in her own words.

    How do you explain or describe your visual impairment to someone? 

    “I usually just say, in the simples words as possible, because I don’t know what good vision is. I explain, I can see, but it’s very, very blurry. I can see who is in front of me, but I can’t tell what eye color they have, or if they have makeup on, or not. I also say that I have blind spots in the middle of both my eyes and if I position my eye in a certain way, I can actually see the blind spots.”

    The visual impairment Gia describes is the result of Stargardt Disease, a macular degeneration, causing progressive central vision loss while leaving peripheral vision in tact. She was affected from a very young age.

    What are the technologies you use everyday? 

    “Obviously, I love my computer and my phone, I think those go hand in hand. Just the ‘zoom in’ features on my phone, especially nowadays a lot of my work for school is online, so my Mac and Apple phone can zoom in. The ‘zoom In’ feature on my iPhone has saved my life. I did not know that existed until my friend, Anastasia Pagonis, (and roommate at the Tokyo games) actually taught me this. And I use my Zoom Mag video magnifier, if I have to take tests or quizzes at school.” 

    You have benefited from the services of CVI,  Center for the Visually Impaired, in Georgia, how did they help?

    “They were super helpful. Not a lot of the teachers at my school were educated on this, they didn’t have a student like me. CVI reached out to them and explained what was going on and told them what they could do to help me in the classroom. They showed me new technology the would also help me in the classroom. They were just hugely helpful because they were there to help guide my parents through this weird and confusing time.”

    How do you find the accessibility of your schoolwork today?

    “It has improved a lot, CVI was so good that I found what worked for me and I just stuck with it. Now in the classroom I just need my video magnifier and the computer and I’m all good. I’m at a place where I’m comfortable in the classroom.”

    Vision loss is often misunderstood by people not experiencing it, what would you like them to know?

    “ I think they should just keep an open mind and listen. I feel that is the best advice you can give to someone who is not educated on something. Try to be in that person’s shoes, veer from stereotypes, because not everyone who is ‘blind’ has dark glasses and a cane, or uses a guide dog.” 

    What advice would you give about dealing with a visual impairment? 

    “I would say, there is always a way to work around things. It may not seem fair, but you can get so much out of it with positivity. Like my sport, I would not be where I’m at without my visual impairment. So just look at the bright side, and I know it might be tough, but if you need help find someone to talk with or find an organization that can help. There are many resources online”

    Gia Pergolini sets an empowering example for people of all ages. Find the things that work and practice to improve your ability. There is so much we can learn from, and teach, each other. Help elevate awareness, and educate others, to the fact that people are often visually impaired, even though it’s not visible. Most important, if you need help, get it.

    Thank you Gia!

  • 10 Things To Know About iPhone Accessibility

    10 Things To Know About iPhone Accessibility

    Updated September 24, 2024.

    The iPhone is quite possibly the most adopted device ever, for people with vision loss. This is because it is accessible out-of-the-box, even if you can’t see the screen at all. If there is one good reason to use an iPhone, there are a hundred good reasons. Here are the top 10.

    How to turn on Accessibility on iPhone

    To find Accessibility in iPhone, go to Settings > Accessibility > Vision. Here you will discover options to personalize settings for VoiceOver, Zoom, Display & Text Size, Spoken Content and Siri. If you need assistance, don’t hesitate to use the #1 tip on this list, call Apple Accessibility Support at 877-204-3930.

    1. Live accessibility support is always available.
    Apple has an Accessibility Support line that you can reach at 877-204-3930. This line is dedicated to addressing the needs of customers with visual, hearing, motor and learning impairments. Don’t go at it alone, call for help 24/7. Get expert assistance with all features in this post, and more.

    2. VoiceOver makes it possible to use the iPhone even if you can’t see the screen.
    VoiceOver is the intuitively designed, gesture-based screen reader that enables people with low vision or total blindness to fully access the iPhone. Touch or drag your finger around the screen and VoiceOver tells you what’s there. Swipe left or right to move from one element to the next. Double-tap to activate a link. VoiceOver is speech output; you do not speak to it, it speaks to you. Click for a list of VoiceOver Gestures.

    3. Siri is ready to follow your voice commands.
    Siri, your virtual assistant, will send text messages, place calls, schedule a meeting, and even turn VoiceOver on and off. Communicate hands free with “Hey Siri” and Siri will always speak responses, so ask a question and hear the answer spoken. Learn more at these links on OE: 10 Things Siri Will Do If You Ask and 10 MORE Things Siri . 

    4. Dictation turns your speech to text.
    Whenever there is a keyboard, there is the option to dictate instead of typing. Tap the microphone key and speak as your words are converted to text. The microphone key is usually located at the lower right corner, below the keyboard or to the left of the space bar. Get started with this step-by-step tutorial: Are You A Dictator?

    5. Speak Screen reads to you upon request.
    Turn on Speak Screen in Accessibility Settings, under the heading: Spoken Content. Turn on Speech Controller and an expandable button will appear on every page, allowing you to adjust voice speed, go back, pause or go forward. Learn more about The Freedom of Speech.

    6. Make the screen easier to see.
    A simple adjustment to Display and Brightness or Accessibility Settings can make your screen easier to read. Try more or less bright, increase the size of text and consider making it bold.

    7. Pinch to Zoom.
    To get a closer look at an image, tap it to expand, then use thumb and index finger to pinch out on screen and zoom in.

    8. The camera turns into a Magnifier with light.
    Turn on the Magnifier in Accessibility Settings and the iPhone’s camera will increase the size of anything you point it at, up to 15x. See details more clearly, and use the flash to light the object. More about this on OE at: Using the iPhone Magnifier.

    9. Safari Reader makes web pages easier to read.
    Tap the AA at left of address bar for page settings, then select Show Reader. This feature magically removes ads and other elements that clutter the page, leaving only the content you want to read without distractions.

    10. Spoken feedback and image recognition assist your photography.
    Using VoiceOver, the camera will say how many faces and where they are in the frame. Hear where and when the photos were taken, and touch the image with 3 fingers to hear description or read text in the photo.