Author: Dorrie Rush

  • Episode 10: WFH – Work From Home

    Episode 10: WFH – Work From Home

    Making work from home work for you, with Dorrie Rush, Jane Breheney and Jaydan Mitchell.

    Full Playlist:

  • Participation in Clinical Trials  for Vision Research

    Participation in Clinical Trials for Vision Research

    Clinical trials are research studies that test treatments in development. They are conducted to evaluate the safety and effectiveness of medications, procedures and diagnostic methods.  Studies are approved by an institutional review board to ensure the science is sound and patients are protected.

    While it is a great act of generosity, volunteering to participate in a clinical trial is a serious decision which should be made with a complete understanding of the commitment involved. Although there is no guarantee you will benefit directly from the research, it’s important to understand that you are contributing to the knowledge base which is likely to help many people collectively over the long term.  Discuss the clinical trial with your physician, other health care providers who are involved in your care and your family during the decision-making process.  It is important that you ask any questions you might have before you make your decision.

    Establishing your eligibility for a vision research study may require the diagnosis of an eye condition. Generally, subjects are screened with a medical history, physical examination, sometimes with a blood test and a comprehensive eye exam including reading a vision chart, measurement of the eye pressure and dilation to evaluate the lens, vitreous and retina. Additional screening may involve questionnaires, lab tests and non-invasive imaging.

    Generally, if you participate in a clinical trial, you can receive at least some of the testing procedures for free, including the new medications/surgical procedures being evaluated. You might either receive the treatment under investigation or the standard of care for your condition. The duration of the trial and frequency of visits is variable depending on the trial and knowing this is important before you commit to participating.

    Participants of clinical trials are integral to the development of treatments along with the manufacturing companies, physicians and study staff so it is important that you make this decision carefully.  It is best to ask your physician or clinic staff if there are any clinical trials you would be eligible for.

    Couple meet with physician to discuss participation in clinical trial.
    Couple meet with physician to discuss participation in clinical trial.

    Examples of Questions to Ask

    Take time to carefully consider the criteria and the commitment. Here are the questions you should have answers for.

    • What is the trial’s purpose and who is the sponsor?
    • What are the participation criteria?
    • Who has reviewed and approved this study?
    • Has the treatment been used in other trials?
    • What is the investigational treatment being compared to?
    • How often is the treatment given?
    • How often will you have to come to the doctor’s office?
    • How long is the trial?
    • What are the potential benefits, short and long term?
    • What are the possible risks and side effects, including irreversible vision loss?
    • Will you incur any costs and/or will your health insurance be billed for any study procedures?
    • Will there by any stipend and/or coverage of transportation costs?

    Informed Consent

    Eligible participants must sign an Informed Consent which describes the purpose of the trial, criteria for eligibility, the treatment, potential risks and benefits, the patients’ rights and responsibilities.

  • Best of OE 2019

    Best of OE 2019

    As the pandemic continues, we can’t help but feel nostalgic for 2019, so let’s circle back for a look at OE’s top pages last year.  Here’s the list with links, for our most popular posts and podcasts.  If you’d prefer to have the text of pages read to you, just click the button marked “Listen” on the upper right menu.

     

    Fresh vegetables and fruits spread out on a gray table.

    The Anti-AMD Diet

    The foods we consume can play a powerful role in preventing or minimizing the progression of age-related macular degeneration.  Read Now

     

    Worker with hard hat falling onto concrete floor.
    Worker with hard hat falling onto concrete floor.

    Don’t Take The Fall, Prevent It

    Falling becomes significantly more dangerous as we age.  Alice Massa, OT, shares her expert advice aimed at elevating awareness and lowering our risk of taking the fall at all.  This page was so popular, we decided to record a podcast with the same title…linked with our podcasts below.  Read Now

     

    Three seniors using different technology in a living room.

    OE Agrees With AAO

    The American Academy of Ophthalmology says many more people will have low vision in the coming years and the tragedy is most are unaware of how to deal with it.  OE highlights the information everyone needs to know.  
    Read Now

     

    Alexa app screen showing a list of featured and new books.

    Alexa, Read My Book

    Alexa can read Kindle and Audible books from a Fire tablet or an Echo speaker.  Once it’s set up, all you have to do is ask.  Read Now

     

    View of the left side of a black car with Uber sticker.

    Your Driver Has Arrived

    Ride-sharing services are available with the tap of an app.  Here are some tips for customers with vision loss.
    Read Now

     

    Couple dancing together in a living room.

    Healthy Aging And Eyes

    Healthy aging is not just about how you look, it has everything to do with how you see.  Take these steps today to preserve your sight for tomorrow.  Read Now

     

    Hand taking a picture of supermarket bottles with a smartphone.

    Aira Adds A Free Tier

    If you’ve ever wished you could just borrow a good pair of eyes to help with a quick task, you’ll definitely want to read this post.  Read Now

     

    Hands holding present with Christmas gifts and ornaments around on a green background.
    Hands holding a present with more gifts and ornaments on a green background.

    Hottest Low Vision Gifts

    Our gift guide from last season remained a top page all year and the selection holds up beautifully. Read Now

    This year’s list is also not to be missed.  Read Now

     

    OE Patients Podcast in white text with magenta and white OE Patients logo.

    OE Patients Podcast

    There is no doubt about it, the big star of 2019 was the launch of our podcast.  Subscribe to OE Patients Podcast on Apple Podcasts, Spotify, or listen on OE.

    Episode 1: Siri, Google & Alexa

    Episode 2: Don’t Take The Fall, Prevent It

    Episode 3: A Conversation With Hadley’s Douglas Walker

    Subscribe to our Monthly Roundup emails so you won’t miss a thing in 2020!  Sign Up Now

    This post was first published December 19, 2019 and resurfaced September 3, 2020. 

  • Episode 9: Accessing Audiobooks, Part 3

    Episode 9: Accessing Audiobooks, Part 3

    Audiobooks are an excellent alternative when vision loss takes our ability to enjoy print. In this episode, Dorrie Rush addresses questions and feedback from part 1 & 2.

    Full Playlist:

  • Improve Your Outlook

    Improve Your Outlook

    Optimism and positivity are inherited traits. Studies show they can also be learned behaviors. It is never too soon, or too late, to build the skills that help us bounce back from adversity. 

    Facing vision loss is a daunting proposition by any standard. Although we may feel discouraged and overwhelmed at times, getting trapped in negativity is detrimental to overall health and well-being.

    Possessing the ability to change the way we think, is a gift in itself. Choosing to exercise our mental muscle builds resilience and resolve. Working on a brighter perspective won’t improve your eyesight, but it will help you see better.

    Visual impairments range from minor to severe across a wide spectrum.  Even the great majority of people meeting the qualification for “legal blindness” have significant usable sight. People generally exhibit an amazing ability to adjust and carry on. A positive outlook and can-do spirit are qualities key to success.

    Here are a few steps toward a brighter perspective:

    • Acknowledge and value the vision you have. Take time each day to look around and appreciate the things you can see. Go for a walk in the park. Admire the ever-changing sky. Watch the sunrise or set.  Get close up to see the face of someone you love and give them a kiss.

    Image shows woman kissing face of smiling man

     

    • Live in the present, don’t waste precious time lamenting your vision past or future.
    • Give yourself credit for triumphs, even small ones. Every success builds confidence and buffers against depression.
    • Practice and repeat. The more you do, the better you get.
    • Use your experience to help others. Optimism is infectious.

     

    Tell us: what keeps your glass half full?

     

    This article was first published August 7, 2017 and refreshed August 20, 2020

  • Episode 8: Accessing Audiobooks, Part 2

    Episode 8: Accessing Audiobooks, Part 2

    Audiobooks are an excellent alternative when vision loss takes our ability to enjoy print.  Learn all about the best options for accessing audiobooks in our conversation with guest, audiobook reviewer and book club moderator, Michelle Ritholz.

    Show notes:

    BookShare Customer Service: 650-352-0198
    Audible Customer Service Phone: 888-283-5051
    Alexa Tech Support Phone: 877-375-9365 
    Amazon Accessibility Phone: 888-283-1678
    Apple Accessibility Support 877-204-3930

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  • Putting Your Affairs in Order

    Putting Your Affairs in Order

    There is no denying, the COVID19 pandemic forced us to ask ourselves some important questions. Have I prioritized my health and well-being? Do I have enough saved for an emergency? Do I want the ventilator or not? Who gets my property should I die? Suddenly we faced the cold realization, there is no guarantee of tomorrow. As social activities deferred to a later date, the idea of creating a will began moving to the top of many a to-do list.

    When preparing a legal document, it’s always wise to consult a professional. We talked with colleague and friend, Mary Fern Breheney, Esq. Here’s what she wants everyone to know.

    Why do you need a will?

    If you care about how your property and financial assets are distributed, a will is the written legal document that specifies and carries out your wishes.  Without this document, your property will be disposed of according to the inheritance laws governed by your state of residence. That may ultimately be okay with you, but do educate yourself before relinquishing control.

    When you die, your Will is submitted to the Court for Probate. This gives your Executor the authority to locate assets and distribute your estate according to the terms of your will.

    Mary Breheney also advises, “Be sure you know the difference between probate and non-probate.” For example, assets with named beneficiaries supersede the directives of a will.

    Judge validating will in Probate Court.
    Judge validating will in Probate Court.

    What should be included for planning purposes?

    You need to know how your real estate is owned, how your assets are titled (joint or individually owned), and whether you have named beneficiaries on financial accounts and insurance policies. To prepare for estate planning, gather documentation for all of your assets including: real estate, business interests, retirement accounts, bank accounts, investments, life insurance, annuities, cars, boats, jewelry, art and furniture.

    Who should benefit and in what way?

    Decide how your property and financial assets should be distributed and understand what assets the will controls. Your attorney will ask if beneficiaries and loved ones have special needs or spending problems.  A Trusts & Estates attorney will counsel clients on the pros and cons of outright inheritances or including Testamentary Trusts in your will.

    Naming an executor.

    Mary noted, “A will allows you to appoint someone you trust to manage the process, as executor, trustee or guardian.” She recommends thoughtfully considering your selection. It is equally important to name back-up or alternate executors, in case the first choice is unable or unwilling to take on the responsibilities of the job. The role of executor is, more often than not, a time consuming, detail-oriented position. Discuss the possible challenges with your chosen executors and consider adding an estate professional to assist with these duties.

    Where is your signed will?

    Let your executor know where exactly your original executed will is to be found. Revisit the document every few years and revise if necessary. Keeping the document current ensures your wishes are carried out.

    Don’t forget your favorite nonprofit organization.

    Legacy gifts are a meaningful source of support for nonprofit organizations. Mary Breheney says that many clients, even those of modest means, consider including meaningful philanthropic gifts to reputable organizations in their estate plans. There are a number of ways to do this and it’s always good to first consult with your attorney.

    Designate a health care proxy.

    The pandemic brought a sense of urgency, not only, to the need for a written will, but also to the designation of an agent in a healthcare proxy. Take this opportunity to create this document which authorizes a person to make healthcare decisions when you are unable. And naturally, let that person know how to carry out your wishes.

    Finding an attorney.

    Although there are many ways to create legal documents online, doing that without an experienced attorney is risky. You might save some cash up front, but your heirs could lose big bucks to an error. Get a personal reference for an estate planning attorney, or do some on-line looking to complete the process of documenting your final wishes with confidence. It will give you back a sense of control.

  • Episode 7: Accessing Audiobooks, Part 1

    Episode 7: Accessing Audiobooks, Part 1

    Audiobooks are an excellent alternative when vision loss takes our ability to enjoy print.  Learn all about the best options for accessing audiobooks in our conversation with guest, audiobook reviewer and book club moderator, Michelle Ritholz.

    Show notes:

    NLS Phone: 888.657.7323
    NLS Online: www.loc.gov/nls/
    NLS Talking Books Program: Click here for application.
    My Library by Michelle Ritholz 8/30/13
    Victor Reader Stream by HumanWare

     

    Full Playlist:

  • Get Back The Joy Of Reading With NLS

    Get Back The Joy Of Reading With NLS

    Accessing audiobooks is a popular topic as we face limited options for entertainment during the pandemic. Two new podcasts on the subject are in production, and we’re refreshing OE’s best articles highlighting programs, services and technologies that promote listening to literature.

    Vision loss often takes the joy out of reading. Enlarging print can make reading possible — but not necessarily easy. This is particularly true for reading books.

    Transitioning from reading visually to listening is a worthwhile process — it can give you back the joy. Not everyone loves the first audiobook experience. It requires a new kind of focus. Initially, for some people, it can be like a sleeping pill.

    Stick with it. In the relatively short term, you will find it is every bit as good as the reading you thought was lost forever. Remember, reading a good book is not the act of seeing the words with your eyes  — it is really about getting immersed in the story, the characters, the subject matter.

    Don’t get caught up in the change. Get caught up in the content. If at first, you don’t succeed, try, try again.

    An excellent way to get this process started is to sign up for the National Library Service Talking Books Program. Eligible borrowers receive audio books delivered postage free. A digital book player is provided, also free of charge.

    Audiobooks can be easily ordered with a phone call to your local network library. Books can be requested by title, by author, by subject, or by categories such as mystery, history, biography, etc.

    There is no due date for the return of your borrowed books and there is no fee for late returns. Listen to books at your own pace.  When finished, just flip the mailing label over and return the disk to the library.

    In addition to audiobooks, NLS also makes a selection of magazines and music available to borrowers.

    Visit NLS online or click here for application.

    Or you can call 888.NLS.READ (888.657.7323) and follow prompts to get an application or find the library in your area that administers the Talking Books Program.

    Reading disability must be certified by a doctor, nurse, optician, social worker, or a librarian on the application. It is not necessary to be legally blind to qualify. 

    Alternatively, Apple iPhone and iPad users, and Android phone and tablet users can download NLS digital content directly through the Bard Mobile App (available on the App Store and on Google Play). The app requires a second registration which will provide a password for logging on. For user guide and registration form, search online for “BARD Mobile Application.”

    Go ahead and enjoy a good read!

     

    Resources

    National Library Service

    888.657.7323

    Online: www.loc.gov/nls/

    Click here for application.

    This article was first published on OE, March 2, 2017 and refreshed July 17, 2020.

    Please note that this article was not paid for, affiliated with, or endorsed by any third-party companies. The views and opinions expressed in this article are solely those of the author’s.

  • Talk to Low Vision Patients About Smart Devices

    Talk to Low Vision Patients About Smart Devices

    In early 2020 I was invited to write an article for the ophthalmic journal, Retinal Physician. The prospect was delightful, because there is only one thing I enjoy as much as enlightening patients about the best solutions in low vision technology, and that is to elevate the awareness of their physicians. The article was submitted at the end of March just as the COVID pandemic was kicking into high gear. The timing for this topic was now in question and I wondered when would it again be relevant?  The rebound was quicker than I expected, and in May the editor offered an opportunity to reframe the conversation for a pandemic world. We did that and the article was published in the July/August 2020 issue.

    The intention of this article is to bring physicians up to date on the proliferation of smart technology options and apps for compensating low vision. Patients are far more enthusiastic to embrace everyday accessible technology, as opposed to expensive and stigmatizing assistive devices. One of the powerful benefits, it helps retain, or recover, a semblance of normal. As the months and years move forward we will find the majority of patients are engaging with some of these devices.

    The article’s revelations were discussed on the Retina Podcast by Drs. Jay Sridhar, Priya Vakharia and Shriji Patel. All three agreed this was important information to share with their patients and that they probably had underestimated their older patients use of technology. Dr. Sridhar started the conversation by saying, “a whole new world opens up when you look at these apps that are available.” Dr. Vakharia said she, “was just blown away, and it might just be because it’s so simple and so easy. The technology is technology that patients have, and I just never thought about it.”  She thought the Ai apps were “purely phenomenal” enabling patients to have a level of independence “I think low vision aids simply cannot provide.” Dr. Patel acknowledged that most of his patients carry an iPhone or Android smartphone and “they may not realize how much power they have in hand.”

    The big question is how to help patients get this information? And the answer is, start talking about it.

    Read the full article on Retinal Physician here.

    Listen to episode 244 of the Retina Podcast here.

    Image of Article in Retinal Physician publication.
    Image of Article in Retinal Physician publication.

    Click this link or the image above to view the full article in the Retinal Physician‘s July/August 2020 publication.

  • Episode 6: Dr. Allen Ho Talks Pandemic Safety & Eye Care

    Episode 6: Dr. Allen Ho Talks Pandemic Safety & Eye Care

    Listen to our insightful conversation with internationally recognized retina specialist, Allen. C. Ho, MD on the risks of deferring eye exams, the implementation of safety measures and how the lessons of the pandemic can improve options of convenience for patients longterm.

     

    Full Playlist:

  • Meditation Made Easy

    Meditation Made Easy

    Although life has slowed in some ways during the COVID pandemic, this is most likely not a time you are feeling at one with the universe.  You may be experiencing a chronic sense of alarm, or a constant undercurrent of anxiety. And coping with vision loss, on top of that, usually adds its own layer of insecurity. Wouldn’t you love to find a way to get a daily dose of Zen?

    Let’s try meditation. It doesn’t have to be difficult or time consuming for it to work, and you can begin benefitting from just a few minutes a day, right away. The more you do, the better you get. The simple act of being still and breathing deeply lowers stress hormones and can help with depression, anxiety and sleep issues. Meditation is a loving and mellow fitness program for your mind. No Sweat. 

    There are plenty of apps and guided meditations available to try, but the best way to begin a mediation practice may be this totally uncomplicated 4-step approach.

    1. Designate a place to meditate each morning at the same time.

    2. Mute your phone and turn off all other noise you can control.

    3. Sit in a chair with back straight, shoulders relaxed, feet on the floor and hands in your lap with palms up or down. The idea is to be as neutral as possible so there’s no need to fidget.

    4. Close your eyes and focus on your breathing. Take a long breath in and let it out slowly. Listen to the rhythm of your breathing.

    Commit to at least 5 minutes each morning for the first week. When you feel ready, add a second meditation at the end of the day and increase the time of each practice to 10, 15 or 20 minutes as you progress.

    To get started, keep it as simple as possible. Set a gentle timer so you won’t have to think about the time that has elapsed. Your mind will wander, that’s okay, bring it back to focus on the breathing. It may be helpful to count to 4 as you inhale and again as you exhale. Feel free to add some soothing music, a version of the lotus position, and a peaceful word or mantra, if you like.

    This is simple, entry level meditating. Keep it up and feel the benefits, short term and long. Or let it be the springboard to becoming a Zen Master. Either way, it’s just minutes a day, and your mind, body and soul will thank you for it.